The Legacy of Sammy Basso: A Tribute to the Longest Living Survivor of Progeria

A Look at Progeria: Hutchinson-Gilford Syndrome (HGPS)

Sammy Basso, the longest living survivor of the rare genetic disease progeria, has passed away at the age of 28, leaving behind a legacy that has touched the hearts of many. Progeria, also known as Hutchinson-Gilford syndrome (HGPS), is a condition that causes individuals to age rapidly, resulting in a reduced quality of life and a life expectancy of only 13.5 years without treatment.

Key Facts about Progeria:

• Progeria affects approximately one in every eight million people born.
• The worldwide incidence of progeria is estimated to be one in every 20 million.
• There are only 130 recognised cases of classic progeria worldwide, with four cases in Italy.
• The Italian Progeria Association believes there could be as many as 350 cases worldwide, as they can be challenging to trace, especially in developing countries.
  

  Sammy Basso: A Remarkable Journey
  

  Born in 1995 in Schio, Italy, Sammy Basso was diagnosed with progeria at the age of two. Despite the challenges he faced, Sammy, along with his parents, founded the Italian Progeria Association in 2005. His inspiring story was captured in the National Geographic documentary "Sammy’s Journey," which followed his travels along Route 66 in the United States with his parents and close friend, Riccardo.

  A Fond Farewell to a Bright Light
  

  As the Italian Progeria Association mourns the loss of Sammy Basso, they express gratitude for his impact and the light he brought into the world. Through his courage and resilience, Sammy touched the lives of many and left a lasting legacy that will not be forgotten.

  In conclusion, the story of Sammy Basso serves as a poignant reminder of the strength and resilience of the human spirit. Despite facing extraordinary challenges, Sammy’s journey inspired hope and brought awareness to the rare genetic disease of progeria. His legacy will continue to shine brightly, reminding us of the importance of perseverance, compassion, and the power of the human spirit in the face of adversity.